tag:blogger.com,1999:blog-30942129453733480862024-02-07T21:55:11.736-08:00Tyler ChambersTyler is a young teenage man with hodgkins lymphoma.
He has relapsed twice and had two transplants. He is quite the fighter.
Tyler died suddenly and unexpectedly on February 7, 2009 of a pulmonary embolism. He was cancer free. It was a very big shock. He had friends coming over later but...His family and friends miss him terriblyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.comBlogger54125tag:blogger.com,1999:blog-3094212945373348086.post-1364299676787733482013-08-07T12:39:00.001-07:002013-08-07T12:39:20.098-07:00Tyler<br />
I miss you so much.<br />
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"nobody will ever know the strength of my love for you, after all you're the only one who knows what my heart sounds like from the inside"</div>
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Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com3tag:blogger.com,1999:blog-3094212945373348086.post-49057268606588041432011-02-08T07:02:00.000-08:002011-02-08T07:07:22.703-08:002 yearsTyler<br /><br />Hard to believe it has been two years since you were called up to heaven. Sometimes I walk in the room and feel like you will be there. It hasn't gotten easier, we miss you so much. I wonder what you would be doing now. Would you be finishing college, girlfriend, planning your future.<br />We love you TyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com1tag:blogger.com,1999:blog-3094212945373348086.post-55598594871654582102010-02-25T09:00:00.000-08:002010-02-25T09:10:31.272-08:00Found on another Mom's page. It says it all.<br /><br /><br />What do we wish others understood about the loss of our child? Here is a partial list of such wishes:<br /><br />I wish you would not be afraid to speak my child’s name. My child lived and was very important and I need to hear his name. I wish you wouldn’t feel awkward if I mention his name.<br /><br />If I cry or get emotional if we talk about my child, I wish you knew that it isn’t because you hurt me: the fact that my child died has caused my tears. You have allowed me to cry and I thank you.<br /><br />Crying and emotional outbursts are healing. I will have emotional highs and lows, ups and downs.<br /><br />I wish you wouldn’t think that if I have a good day my grief is all over, or if I have a bad day I need psychiatric counseling.<br /><br />I wish you knew that the death of a child is different from other losses and must be viewed separately. It is the ultimate tragedy and I wish you wouldn’t compare it to the loss of a parent, spouse or pet.<br /><br />Being a bereaved parent is not contagious, so I wish you wouldn’t shy away from me. I wish you knew that all the “crazy” grief reactions that I am having are in fact very normal. Depression, anger, frustration, hopelessness, the questioning of values and beliefs are to be expected following the death of a child.<br /><br />I wish you wouldn’t expect my grief to be over in six months. The first few years are going to be exceedingly traumatic for us.<br /><br /> As with alcoholics, I will never be “cured” or a “former bereaved parent,” but will forever be a “recovering bereaved parent.”<br /><br />I wish you understood the physical reaction to grief. I may gain or lose weight, sleep all the time or not at all, lose my short-term memory, develop a host of illness and be accident prone, all of which may be related to my grief.<br /><br />Our child’s birthday, the anniversary of his death, and the holidays are terrible times for us. I wish you could tell us that you are thinking about our child these days and if we get quiet and withdrawn, just know that we are thinking about our child and missing him terribly.<br /><br />Please understand the I am not the same person I was before my child died, and do not expect me to "get back to my old self". I am forever changed, but if you give me a chance, you may find that you like the "new me".<br /><br />That about sums it up. But I also want to thank all that have been there for us. It means so much.<br /><br />KTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com1tag:blogger.com,1999:blog-3094212945373348086.post-63749922667935603772010-02-06T05:52:00.000-08:002010-02-06T06:14:10.162-08:00It's been one yearI can't believe it's been one year since Tyler left us. I still feel at times that I'll walk in the door and he'll be there.<br /> It just stinks that he was doing so well and had been through so much to be taken so suddenly by a pulmonary embolis.<br />We are still trying to find our way in this new "normal" it's so hard! We all feel like a piece of our heart has been ripped out.<br />As for now we engulf ourselves in school and work. We want to find something special to honor Ty. We have done LLS "light the night" ACS walk, and written an article for Bone marrow donation drive. Thinking of starting a foundation in his name to help many organizations and a scholarship for kids that maybe in general have a challenging life. Tyler was interested in the scholarship, he asked about it several weeks before he died. Maybe he knew more than we did.Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com1tag:blogger.com,1999:blog-3094212945373348086.post-11609857304768255902010-01-05T09:58:00.000-08:002010-01-05T09:59:10.067-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQv-KdI69Ga9W8b5o0xqXeOLsswiIxsTN56vi4sZTZPL8oyez7Hqj43uncOF2GhCQBA6wzosIsPDiKczU3xk57n3z6ASj6PPLRkQUnNZIt0BabVcLqDuh2kHcfiyd_q9yPr7bRyfiLQA0/s1600-h/DSC_0105%5B1%5D.JPG"><img id="BLOGGER_PHOTO_ID_5423316793154400514" style="WIDTH: 320px; CURSOR: hand; HEIGHT: 214px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQv-KdI69Ga9W8b5o0xqXeOLsswiIxsTN56vi4sZTZPL8oyez7Hqj43uncOF2GhCQBA6wzosIsPDiKczU3xk57n3z6ASj6PPLRkQUnNZIt0BabVcLqDuh2kHcfiyd_q9yPr7bRyfiLQA0/s320/DSC_0105%5B1%5D.JPG" border="0" /></a><br /><div></div>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-11263786092737706392009-10-07T12:55:00.000-07:002009-10-07T13:00:02.656-07:00Light the Night<a href="http://pages.lightthenight.org/noh/Toledo09/TeamTyler">http://pages.lightthenight.org/noh/Toledo09/TeamTyler</a><br /><br />We are walking in support of so many who are fighting this awful disease in Tyler's memory the way he would want us to. If you would like to support us in any way,walk,donate, it would all be much appreciated. Just go to the link.<br /><br /><br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com2tag:blogger.com,1999:blog-3094212945373348086.post-6663184243328541352009-07-10T18:41:00.000-07:002009-07-10T18:43:05.528-07:00<span style="font-size:180%;">Happy Birthday Tyler</span><br /><br /><br /><br /><br /><br /><br /><img src="http://smileys.smileycentral.com/cat/23/23_29_120.gif" alt="Webfetti.com" border="0" /><br/><a href="http://www.webfetti.com/dl/index.jhtml?partner=ZKzeb033_ZKxdm173YYUS&utm_campaign=wf_smiley&utm_source=1055457&utm_medium=wf_blogger"><img src="http://t.webfetti.com/images/nocache/tr/wf/rds/sm/bl/1055457.gif" width="160" height="18" border="0" /></a><br/>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-20575470168637621922009-05-30T17:17:00.000-07:002009-05-30T17:23:04.488-07:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2xcZVC1gZtYS5U3QlJZP9zRuPYk1YKEIrg8FtUa0vekm9hm4Cs-Fl8vlpeWpz7DPj61kIg4hLuAUlYQQHHyb8AyrQ-4vo6opusuWwYGH5wtOGR_92YsbCCtDAHm-aTry-vouT9ZyL93g/s1600-h/Chambers_Tyler_collage.jpg"><img id="BLOGGER_PHOTO_ID_5341776462197757810" style="WIDTH: 271px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2xcZVC1gZtYS5U3QlJZP9zRuPYk1YKEIrg8FtUa0vekm9hm4Cs-Fl8vlpeWpz7DPj61kIg4hLuAUlYQQHHyb8AyrQ-4vo6opusuWwYGH5wtOGR_92YsbCCtDAHm-aTry-vouT9ZyL93g/s320/Chambers_Tyler_collage.jpg" border="0" /></a><br /><div>Rhonda put this together for us, I thought I would share with my friends. This is a little bit of who Tyler was.</div>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-37617276954022403242009-03-30T16:09:00.000-07:002009-03-30T16:10:32.477-07:00<embed src="http://media.mtvnservices.com/mgid:uma:video:cmt.com:227381" width="416" height="343" type="application/x-shockwave-flash" flashvars="configParams=&artist=1898341&vid=227381&%26startUri=mgid:uma:video:cmt.com:227381" allowfullscreen="true" allowscriptaccess="always" base="."></embed> <div style="FONT-SIZE: 12px; MARGIN: 0px; WIDTH: 416px; FONT-FAMILY: Verdana,sans-serif; TEXT-ALIGN: center"><a style="COLOR: #ec660c" href="http://www.cmt.com/artists/az/anderson_keith/artist.jhtml" target="_blank">Keith Anderson</a> <a style="COLOR: #ec660c" href="http://www.cmt.com/music/" target="_blank">More CMT Music</a> <a style="COLOR: #ec660c" href="http://www.cmt.com/video/music-videos/" target="_blank">More CMT Music Videos</a> </div>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-73869222447618466902009-03-12T12:23:00.000-07:002009-03-13T09:46:43.704-07:00It's been a while since I have updated and I'm still not sure what to say.<br />It's been pretty tough on all of us since Tyler passed away.<br />We really had no warning, no idea that this was going on. Tyler never complained about anything or showed any symptoms that anything was wrong. He basically layed down on the floor (the boys thought he was playing with the cat) and he was gone. <br />We have so many unanswered questions of what may have caused this, I will try to contact his BMT doctor again when I get the coronors report. <br />I have not heard back from them. <br />It was such a shock, everything was pointing in the direction of him doing so well. Even the coronor said it is hard to understand why this might have happened in someone as healthy as he was. <br />Healthy seems so unusual of a word for someone in his shoes, but that goes to say his insides were still in good shape.<br />It's hard to write, so I am taking baby steps right now. I will write more later.<br /><br />I do want to thank EVERYONE for all their sympathy, support, love and prayers.<br /> And also for including Tyler in their carepages,caringbridge and blogspot sites. Thanks to everyone at the LLS discussion board and webmagic-hodgkins lymphoma board for all your love and support.<br />Mrs Blausey you are such a special lady, we love you.<br /> Everyone at the Eastwood schools including his class of 2008, you're all wonderful. All of our FAMILY and FRIENDS, including Troy Twp Fire and EMS have done so much for us, thank you. Amy thanks for being there, I know it was hard. <br /> And Sara thank you for including Tyler's name on your bike ride in Tahoe benefitting LLS. Everyone who has taken such good care of Tyler, Thank you.<br /><br /><br />To all our cancer warriors keep fighting, you can win this war.<br />Prayers to all<br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com2tag:blogger.com,1999:blog-3094212945373348086.post-61595268917071125782009-02-15T09:39:00.000-08:002009-02-15T09:40:35.377-08:00I don't know what to say<br /><br />Our Grandma "Ma" has passed away<br /><br />I try to see Tyler hugging her as she joins him<br /><br />Thank you everyone for all the thoughts,prayers and love.<br /><br />She has lived a long, wonderful life and was very much loved.<br />She was 96 years old.Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com1tag:blogger.com,1999:blog-3094212945373348086.post-46516712789415856792009-02-09T18:09:00.000-08:002009-02-09T18:48:23.778-08:00We just heard from the coroners office.<br />Tyler had a pulmonary embolism ( Pulmonary embolism is the sudden blockage of a major blood vessel (artery) in the lung, usually by a <a href="http://health.yahoo.com/heart-overview/blood-clot/healthwise--tp12576.html">blood clot</a>. In most cases, the clots are small and are not deadly, but they can damage the lung. But if the clot is large and stops blood flow to the lung)<br /><br />His death was instant,no symptoms, the coroner said sometimes they just develop.<br /><br /><br /><br />He also said their was no evidence of disease (Hodgkins)Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com13tag:blogger.com,1999:blog-3094212945373348086.post-11961529699664463892009-02-09T04:12:00.000-08:002009-02-09T04:15:48.099-08:00Tyer is in HeavenAfter a three year long battle with Hodgkins Lymphoma, Tyler passed away suddenly Saturday night around 6:00pm.<br /> Tyler was always a fighter but couldn't fight what ever took him from us Saturday.<br />We don't know what took him but it was fast and we don't believe he suffered.<br />Funeral services will be :<br /><br />Marsh Funeral Home<br />Luckey Ohio 43443<br />419-833-4011<br /><br />Visitation:<br />Wednesday February 11th<br />2:00-4:00<br />6:00-9:00pm<br /><br />Funeral:<br />Thursday February 12th<br />11:00 am<br /><br />St Johns Lutheran Church<br />5520 Fremont Pike (State RT 20)<br />Stony Ridge Ohio<br /><br />graveside service following and Beveavement Luncheon following<br /><br />Online obituary and guest registry <a href="http://www.marshfuneralhomes.com/">www.marshfuneralhomes.com</a><br /><br />We really miss him!!Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com19tag:blogger.com,1999:blog-3094212945373348086.post-82044289406569066612009-01-30T09:09:00.000-08:002009-01-30T09:13:28.565-08:00levelsWe haven't checked in for a while, things are going pretty good.<br /><br />The week of christmas while doing ECP, Tyler's immuniglobin dropped into the 200's and the day after christmas he was at UM getting Ivig infusion.<br /><br />Our friend Jan's grandson passed away on December 27th after battling cGVHD for about a year after an allo transplant. We met his family when Tyler had his transplant. He gave it a very good fight until his body just gave out. Our thoughts and prayers are with his family.<br /><br />Last Friday Tyler had an appointment at UM cancer center and for some reason his counts decided to go a little off from two weeks ago.<br /><br />His Tacro (anti-rejection med) level went high<br />His platelets droppedThis is his CBC levels we're watching:<br /><br />------- 01/07/2009 --- --- 01/22/2009<br />Tacro level ----8.0 --- -- 1.5<br />Potasium ----5.2 - ----- 5.1<br />immuniglobin ---- ? --- -- 417<br />Platelets ----162 --- -- 109<br />RBC ----- 4.30 --- -- 4.22<br />WBC ----- 13.6 --- -- 8.6<br />ALT ----- 49 --- - -- 43<br />LDH ------ 381 --- - -- 389<br />ANC ------11.2 --- - --- 6.1<br /><br />Some levels dropped down and others went up, so they don't know if he was dehydrated or had a virus (a week ago he had diarrhea) so they ordered more tests, including thyroid (he's always so cold).<br /> We also had to get more blood work this week (haven't heard results yet). They dropped his tacro from 1 mg twice a day to .5 mg twice a day (and he had to skip next two doses), dropped his steroid from 48mg every other day to 32mg every other day and stop Bactrim for now.<br />I have to tell you starting Sunday his eyes started to look red (cGVHD?) his temp on two different thermometers was 94.5f and 94.7f, We were a "little" concerned on breathing.<br />Monday night at about 7:30pm he proceeds to tell us everything went black on him 3x that day, he didn't pass out but he had to wait for things to come back.<br /> We started to push him to drink more including some powerade, and kept him from school the following day.<br /><br />No, we didn't call UM because he was still controlled and we kind of thought maybe between being dehydrated and the big drop in meds that could of been the cause.<br />We even debated on whether or not his skin was starting to look a little red.Wednesday things started looking better and today eyes look alot better, skin doesn't look red at all and no more blackout issues!<br /><br />Who Knows?!!<br /><br />I am just glad things are starting to turn back around. He is much better about keeping hydrated (we think that it kind of scared him) and now he realizes how important it is.February 20th is next cliic visit but we're sure he will have to have Ivig before that. That will be his 4th blood product he has received besides stem cells in his three years of fighting this awful disease.<br /><br />March we start 1 year tests<br /><br />Please keep all our cancer warriors in your prayers!!<br /><br />God Bless<br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com1tag:blogger.com,1999:blog-3094212945373348086.post-24649768163022550792008-12-18T16:56:00.000-08:002008-12-18T16:59:50.360-08:00And the news is...Every time around Nov/Dec scans the news is always bad, Tyler either is diagnosed or relapsed with Hodgkins.<br /><br />Even his oncologist had commented that they neede to stop scanning him at this time of the year.<br /><br />But NOT this time! Tyler has officially broken the chain!!<br />His PET CT showed CLEAN!!<br />WOOHOO!!!!!<br />It has only been 9 months but this was a very nerve wreaking time!<br /><br />Also blood counts are good, pulmonary was good, and cGVHD looked very good!<br /><br />The BMT doc dropped his tacro down .5mg a day and his steroids down 16mg.<br />A very, very good day!<br /><br />Party at One Year!<br />Everyone will be invited!<br /> He is on his way! I feel very good about it!<br />He has never made a year yet but this is going to be the time! And beyond!<br /><br />Love to all<br /><br />And have a very Merry Christmas!!!<br /><br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com3tag:blogger.com,1999:blog-3094212945373348086.post-21608673919828120322008-12-02T16:32:00.000-08:002008-12-02T16:33:38.685-08:00sign the petition<a href="http://www.thepetitionsite.com/1/CureChildhoodCancer"><img alt="Photobucket" src="http://i353.photobucket.com/albums/r392/AJsDad4227/curepetitionurl.gif" align="center" border="1" /></a>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-76899323926696815602008-12-02T08:13:00.000-08:002008-12-02T08:19:08.729-08:00IN A CloudEver feel like your mind is in a cloud?<br />Lately I feel I just can't think straight!<br />I am sure it's just the stress of upcoming scans but it sure is taking a toll on me. I have been trying to get hours at work but sometimes... it's the little blunders lately! Oh well, trying!<br />I want to thank everyone for writing in all the well wishes to Tyler!<br /> It's nice having such wonderful and supportive friends and family!<br />Tyler is doing pretty good.<br />His first appointment back won't be till the 15th and ECP again the week of xmas.<br /> His eyes,skin and mouth are looking better so maybe the ECP is working. He is having an issue with cramps in his calf off and on. He is trying stretching to relieve it. Probably the steroids.<br /><br />I have talked to a Grandma of a young man who had a transplant a few months before Tyler. Unfortunately his GVHD is getting the best of him and he is on life support. Please say a prayer for Allen and his family, it doesn't look good. He has been in pain and hasn't walked for a long time.<br />I also talked to a friend and a little girl who was being treated for ALL when Tyler was being treated has relapsed and will need a transplant.We're praying for you Vesta! I don't know for sure but I think she is 5 or 6 now.<br /><br />Also Eric, praying for a successful 2nd transplant<br />Adrienne hoping they will be able to pin point the pain and find a new trial for you<br />Noah hoping transplant will not be too far off<br /><br />Also prayers for all our cancer warriors as they courageously fight their battles! We are thinking of each of you!<br /><br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com3tag:blogger.com,1999:blog-3094212945373348086.post-38226644827956174432008-11-16T17:18:00.000-08:002008-11-16T17:21:01.556-08:00Anime/Halloween CostumeTyler's Anime Costume<br /><br />OK kids, Here's Tyler's Anime/Halloween costume and his pride!<br />He has been collecting pieces here and there.<br />The whole costume made him weigh an extra 30 to 40 pounds!<br /> He wore it up on 7 Mott on halloween and to ECP.<br />On the out to the car we were stopped by security and wanted to know if he was a patient and if he had hospital I.D.<br />Funny thing is we were leaving (going towards parking elevators)after being there for 5-6 hours!<br /><br />Oh well I told Ty I think he just wanted to see his costume! But we got a laugh out of it.<br /><br />If you like it let Tyler know I am sure it'll really pick up his spirits reading peoples comments!Thanks<br />Kelly<br /><br /><a href="http://s282.photobucket.com/albums/kk265/chamberoh/?action=view&current=472.jpg" target="_blank"><img src="http://i282.photobucket.com/albums/kk265/chamberoh/472.jpg" border="0" alt="Tyler Costume" /></a>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.comtag:blogger.com,1999:blog-3094212945373348086.post-17304609941307162482008-11-16T17:16:00.000-08:002008-11-16T17:18:20.635-08:00Another DayAnother Day<br />Posted Nov 14, 2008 1:00pm<br /><br />Well, yes today was another day!!!Tyler had ECP today again but it didn't go as well.<br />We had Eileen again today but getting hooked up wasn't as easy.<br />She tried several veins and even asked someone else to try but it just had to be difficult.<br />Tyler said it hurt a couple of times but nowhere near as bad as before.<br /> When she finally found a vein she could access it wouldn't draw blood!<br /> So they covered his arm with a warm blanket to try to get the vein expanded and it did finally work.She could only get one cycle done by 11:30am (they started at 8:00am) and usually do three cycles. She said his blood was thick(?) and wasn't flowing very well.<br /> She also said it probably would have been 4:30 or 5:00pm before they would of gotten three cycles in! Who knows always something.<br />But he did get a treatment of some anyways and Tyler wasn't complaining about leaving early.Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.comtag:blogger.com,1999:blog-3094212945373348086.post-5560760621476583612008-11-13T20:09:00.000-08:002008-11-13T20:12:15.187-08:00Half way good dayToday was a half way good day today!<br />Tyler wasn't in the greatest mood, about 15 min before we got to U of M.<br /> I swear that kids whole personality changes (for the worst) when it's a hospital day. Issues with inserting the IV for ECP doesn't help the mood!<br />We started out at blood draw at 10:30am. Anything I suggested wasn't what he was going to do, but we got through it.<br />Then we went to clinic. We had a new young doctor helping out the BMT doctors, Dr Andrew Harris. We met him on Halloween when we stopped up on 7Mott (in costume). He is very nice and funny! He grew up here in Ohio not to far from us. He gave Tyler a complete work over, checking muscles and coordination etc. He and Tyler talked Ohayocon ( anime convention in Jan) and Boon Dock Saints movie. They had a lot to talk about. We also seen Dr Kitko. It's been awhile since we got to see her. She thought everything looked pretty good and they also said his counts (the ones that were in) all looked really good.<br />Then they figured he should get a flu shot. What a look I got from Ty. But he went through with it, but wasn't happy about it.<br />On our way out Tyler discovered his lap top power cord wasn't in his bag soooo... we ran back to blood draw and up to clinic to see if it had fallen out there. Needless to say it wasn't either place. So another bad attitude, he's sure somehow it was my fault, he was still working on why ( reasons were pretty bad). I'm sure I didn't help because he was fiddling around with stuff in blood draw that he didn't have time to do and my suggestions went on deaf ears, so it kind of ticked me off. We were running around looking for this cord, plus dealing with attitude... and we were a little late for ECP. Oh by the way, later we dicovered the cord was left at home because he forgot to pack it when we had told him to make sure to get around because we were going to leave... oh well.<br />Today we had Eileen for ECP and she got a vein right away! YAY Eileen!!!! Everything went real well there and that helped his mood somewhat except for the fact he couldn't use his laptop because the battery lost its charge right away.<br />Once we left up there about 5:15pm he was in a better mood, we weren't. My hubbie forgot to get the parking pass validated so it cost us $6 for parkig!!!!<br /> Oh well, tomorrow is another day!!<br />By the way we talked to a really nice family again today at ECP. Chris and Frank's daughter Laura had anaplastic anemia and had a transplant. She had 2/six month long stays at the hospital ( other stays also just not as long), 3 week stint in PICU and cGVHD and has done 200 treatments in ECP!!!! Poor kid has been going through so much, her mother told me it has been 10 years of all this! I had a very nice time talking to Chris today, we have more in common than what I thought!<br />Throw some extra prayers their way.<br /><br />I am going to try to put some pics of Tyler's costume on today or tomorrow. It's pretty good!<br /><br />Thanks for checking in<br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.comtag:blogger.com,1999:blog-3094212945373348086.post-76381576933836040972008-11-05T17:50:00.000-08:002008-11-13T20:20:32.071-08:00LEAVE A MESSAGE HERE<span style="font-size:130%;">Please leave a message of encouragement for Tyler as he battles this disease</span>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com5tag:blogger.com,1999:blog-3094212945373348086.post-68193310203318726322008-11-04T09:25:00.000-08:002008-11-04T09:28:49.100-08:00Cancer's AngelsThis video is so heartbreaking! To see all the Angels that cancer has taken away from us.<br />I have known several of these beautiful faces from carepages and caringbridge. I just thought I'd share with you. We need a cure!<br /><br /><br /><a href="http://www.onetruemedia.com/otm_site/view_shared?p=7482ab8599a71f7777881b&skin_id=601&utm_source=otm&utm_medium=text_url">http://www.onetruemedia.com/otm_site/view_shared?p=7482ab8599a71f7777881b&skin_id=601&utm_source=otm&utm_medium=text_url</a>Tyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-19526149320394691682008-10-30T19:40:00.000-07:002008-10-30T19:45:19.411-07:00Another DayWell I'm sure I didn't make any friends today.<br /> TY had ECP today and we had the same nurse so... I told her that it was too hard on Tyler (and he has been through too much in 3 years) to poke and jab to get a vein and if it wasn't able to get it the first time she had to let some one else try.<br />I was very nice about it , at first, and of course she didn't have any problems before?! Well there were alot of excuses etc etc etc.<br />I won't go into all the details but I'm sure I offended someone, it wasn't my intensions, but, doggone it I had to say something.<br />She did end up getting it in, we did switch off nurses, and Tyler compromised on where they could try to put it in with retrictions. I told them that we might have to talk to the doctor to see if she could come up with someone that may have a easier time with Tyler's veins.<br /> Of course it was because Tyler's veins have been so overly used(?).<br />It isn't because of blood draws or ECP,but that is pretty much all they have used his veins for and they could get them in the beggining.<br /> But anyways, I'm not there to make them happy, I'm there for Tyler.<br />He was getting so stressed out! The look he kept giving me. I felt so guilty!<br />In the end they said they understood, but then asked me if Tyler was on any anti-depressents? You know he doesn't need to be drugged out just so they can get his IV in!!<br />I'm sure he is depressed sometimes, I would be too! He does talk to us about things that are bothering him, does things with his friends, goes to school, tells us about his day and when things aren't going right. When he walks in the door of the hospital his mood does change completely. Do you Blame him!!!<br />We got through ECP after all that, last week he also got the Ivig infusion and that went fine too (oh and they didn't have to dig for the vein). Everyone was very nice down there. His nurse was very good! We also seen his main BMT nurse Teresa! And he didn't want one but Sara, who is a message therapist gave me a wonderful message (shoulders and neck). I think she could tell I really needed one! She is so sweet!<br />His blood counts were evening out last week and this week they look much better!<br />calcium is back up<br />AST - 22<br />ALT - 50<br />LDH - 331 a little high<br />ANC - 7.1<br />WBC - 10.3<br />HGB - 13.6<br />HCT - 39.1<br />PLT - 151<br />So far going pretty good! Oh he has another ECP tomorrow. We'll see how it goes. I like them as people, they can be very nice even nurse "jab" just sometimes some don't feel they have to listen to the patient, and have a hard time believing that maybe there not in the right.<br />Tyler is planning on wearing a costume tomorrow up there. I will try to post pictures.<br />Thanks for listening<br />And put a prayer in for our new friend Noah and mom Diane.<br />We met them last week. Noah has been through a lot, he's a cute kid!<br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-38905429909899326262008-10-16T19:23:00.000-07:002008-10-16T19:30:49.982-07:00Fun, Fun, FUN!!!Hi all<br />I thought I would update after all appointments this week.We started the week Monday at UM with ECP Photopheresis. The nurse had some difficulty getting a vein and ended up giving Ty a nice bruise but other than that it went fine.<br /><br />Tuesday he had an eye appointment at Kellogg eye center. Ty's eyes are very dry but his vision is still very good. The doc said to continue with the restasis eye drops but to schedule regular eye drops in through out the day at least four times a day. She also told us to watch for other issues being they are starting to wean on the steroids.<br /><br />Today he had a BMT clinic appointment and ECP. His Immunoglobuling is low (325) which are basically his immunities, ability to fight off infections and viruses. Next Thursday he is going to be infused with Ivig which takes about 6 hours. Needless to say, Tyler was not happy about it! But they have been watching it and it has been going down. They say that's not unusual after a transplant. They were surprised when we said Tyler has never had it before. After three years of treatments and two stem cell transplants the most he has to be infused with is one thing of blood and that is it! He is not the usual transplant patient.He is also having a slight issue with his glucose level. It was the most it has ever been, 238 (the most we have seen is like 140). Steroids can cause diabetes so here is another thing they are going to keep an eye on!Tyler wasn't thrilled with this news either. He was rather grouchy at our visit. I think the stress just starts getting to him!<br />The rest of his counts were:<br />Calcium a little low (unusual)<br />Protein a little low<br />ALT 55<br />AST 17<br />LDH 321<br />WBC 11.5<br />HGB 14.6<br />ANC 9.9<br />Also they cut his steroids down again 64mg evey other day.<br /><br />So then off we went to ECP and had a little issue with getting the IV started. She continued to poke and prod into his arm and I had to step in also because she was so determined to show she could get it in, she really made it miserable for him! The other nurse kept saying she could get it in the other arm,but to no avail she wouldn't listen to her. Then she put it inside his fore arm which continuously hurt him and we told her it had to come out! GEES!!! Don't get me wrong she is a nice enough person but.... I think we will just not let her do it anymore! Two times (days)is enough!!! So anyways he got his ECP and they had to watch his BP because it tends to run low and it did get to 93/52. That same nurse insisted he needed a big kit instead of the small, don't know why because it still took as long as before and they still had to watch because of his BP! I still don't see the benefit and I don't think I was the only one who thought that way!<br />Around 6-6:30pm we were on the road for home. Another LOOONG DAY about 10 1/2 hours including drive time!<br /><br />Well thanks for checking in! We appreciate the prayers!<br />Please keep all our cancer friends in your prayers!<br /> Including:<br />Nicker (wilms) praying for NED<br />Carly getting through her treatments<br />Nick B had a hard day at UM the other day<br />Allen with his cGVHD and has been in the hospital alot<br />Chelsea I hope scans come back NED<br />Evan just starting with cGVHD<br />and all our UM,Toledo Childrens, LLS board,caring bridge, carepages and Web magic board friends who are all fighting their battles so bravely!<br />It's so sad there are so many!<br />And to Babyhope who earned her angel wings may her family find peace!<br />KellyTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com0tag:blogger.com,1999:blog-3094212945373348086.post-21759152452832480682008-10-10T18:03:00.000-07:002008-10-10T18:05:05.871-07:00ECP<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzYEFLubaDCtfOPLcTdDKv55xowT2kxB7-3MzUAfuTojdO4FsLqXxybMKhZkWdWlRZ4ebEIR0ZW74FCvZ5kfUmXUyr_tDxIJNDVvjqSmsz1Pv6hg7kBirOd7FXjG0G0SlW1qbue3xWHso/s1600-h/007.JPG"><img id="BLOGGER_PHOTO_ID_5255695734077485346" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; CURSOR: hand" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzYEFLubaDCtfOPLcTdDKv55xowT2kxB7-3MzUAfuTojdO4FsLqXxybMKhZkWdWlRZ4ebEIR0ZW74FCvZ5kfUmXUyr_tDxIJNDVvjqSmsz1Pv6hg7kBirOd7FXjG0G0SlW1qbue3xWHso/s320/007.JPG" border="0" /></a><br /><div></div><br />ECP PHOTOPHERESISTyler Chambershttp://www.blogger.com/profile/16380939672860897515noreply@blogger.com1