2008 NASCAR Foundation Blood and Marrow Drive
July to October at race tracks nationwide This summer and fall, join with thousands of other race fans to help save lives. Be part of the annual NASCAR Foundation® Blood and Marrow Drive — give blood and join the NMDP Registry as a bone marrow donor. Race tracks nationwide have teamed up with the Hendrick Marrow Program and National Marrow Donor Program (NMDP), The NASCAR Foundation and the Jimmie Johnson Foundation (http://www.jimmiejohnsonfoundation.org/) to save lives.
Life. It's in you.Join the donor Registry and give hope to patients everywhere. To help you save a life, the Nationwide Foundation and the Hendrick Marrow Program are covering costs for volunteers who join at a participating track or online during a special campaign September 7 - 22, 2008.
Join at a race track near you Visit The NASCAR Foundation to find participating tracks: http://foundation.nascar.com/NetCommunity/Page.aspx?&pid=201&srcid=183
Can't make it to a track? Join the NMDP Registry for free here September 7 - 22
Join online now.
http://www.marrow.org/ABOUT/Your_Contributions/Hendrick_Marrow_Program/index.html
Sunday, September 14, 2008
Saturday, September 13, 2008
Hi
Ryan , my younger son had his knee surgery Friday and is doing well! He was so funny after they gave him his pre-meds. He said and did such goofy things. The nurses just loved him! He is at a homecoming dance at this moment, beieve it or not! I think he's going to be sore afterwards but what do I know, I'm just mom!
Kelly
Ryan , my younger son had his knee surgery Friday and is doing well! He was so funny after they gave him his pre-meds. He said and did such goofy things. The nurses just loved him! He is at a homecoming dance at this moment, beieve it or not! I think he's going to be sore afterwards but what do I know, I'm just mom!
Kelly
Thursday, September 11, 2008
Scans and photpheresis
Tyler had his appointment at UM today.
This was just a re-check.
His GVHD looks better but still there and his liver enzymes (alt and ast) are elevated enough to put him back on actigal. Also his white blood cells and his glucose is elevated. From what they told us this is probably from the gvhd and some from the steroids he is on. Funny (not really) he went from about three pills twice a day to about ten pills twice a day in about 2-3 weeks.
But he is doing good and we are going to start photopheresis on the 18th. So far he will do this 2x a week every other week until they feel he doesn't need it anymore (if it works or doesn't). The hopes are to get him off steroids before they do damage to his body.
Also PET-CT, PFT, Heart Echo on the 16th. We will post when we find out results.
We're feeling all the love and prayers coming our way!
THANK-YOU
Kelly
This was just a re-check.
His GVHD looks better but still there and his liver enzymes (alt and ast) are elevated enough to put him back on actigal. Also his white blood cells and his glucose is elevated. From what they told us this is probably from the gvhd and some from the steroids he is on. Funny (not really) he went from about three pills twice a day to about ten pills twice a day in about 2-3 weeks.
But he is doing good and we are going to start photopheresis on the 18th. So far he will do this 2x a week every other week until they feel he doesn't need it anymore (if it works or doesn't). The hopes are to get him off steroids before they do damage to his body.
Also PET-CT, PFT, Heart Echo on the 16th. We will post when we find out results.
We're feeling all the love and prayers coming our way!
THANK-YOU
Kelly
Tuesday, September 2, 2008
Another day
Another day at U of M. Appointments went ok. Tyler's GVHD is of concern to the doctors. They are afraid it will get away from them and get into his organs and so forth. They increased his Tacro (anti-rejection) meds to 2.5 mg a day, new steroids Medrol,64mg a day, Flucmazole for fungal infections and another cream for his face. They also would like to start some treatments called ECP Photpheresis. This is where they would take your blood from one side of you, seperate T-cells (part of your white cells that fight infection, cancer etc) expose them to UVA light, and return them to his system. The result is suppose to stimulate the treated cells to attack cells causing disease. Like a vaccination. There is a lot more medical gargan that goes along with it and there are many sessions.Tacro limits the cells, kind of keeps them under control, Steroids kill off cells, thats why they're limiting amount, and this ECP trains cells (basically).
It's all well and fine, but Tyler so strong and so in control, had a breakdown after we left. He would not be happy if he knew I said anything,but I told him it was good to get it out. It's so frustrating for him! He just would like a chance to be a normal kid! Even if he is 19 now, he hasn't had a chance to be just a kid since 10th grade! I am helpless, I can't "make it all better" isn't that what mom's do?! I have always tried to help my kids work thru any problems they had, and I guess that's all I can do! Be there for him. It's just so unfair how these kids have to go through this!
Thanks for listening
Prayers appreciated
Throw in few extras for those fighting this awful disease
Kelly
It's all well and fine, but Tyler so strong and so in control, had a breakdown after we left. He would not be happy if he knew I said anything,but I told him it was good to get it out. It's so frustrating for him! He just would like a chance to be a normal kid! Even if he is 19 now, he hasn't had a chance to be just a kid since 10th grade! I am helpless, I can't "make it all better" isn't that what mom's do?! I have always tried to help my kids work thru any problems they had, and I guess that's all I can do! Be there for him. It's just so unfair how these kids have to go through this!
Thanks for listening
Prayers appreciated
Throw in few extras for those fighting this awful disease
Kelly
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