More info

We found out more info on echo: Injection fraction is 63% and Shortening fraction is 45%.
In other words he still has a NORMAL heart!!

http://www.acor.org/ped-onc/survivors/cardio/cardiotests.html

Tyler also started ECP Photopheresis today and he said it was a breeze! Hopefully it will do it's job against GVHD. I asked what an "average" length of time would be for doing ECP and I was told an average could be 18 months to 2 years! But... it might start at every 2 weeks then eventually be changed to 3 weeks, 4 weeks,once a month, every other month. It also could be a shorter time or longer just depends.
Also blood work looked good
Alt on it's way back down
WBC a little high (caused by gvhd we think) but not too bad
Platelets a little low but not bad
Over all another good day!!

Love to all
Kelly

Woo Hoo!!!

We got a call from Dr Stein, she said PET CT Scan looked good!

NO SIGN OF RELAPSE!!!!

He's only 6 months out but I was very worried this time!! Don't know why but a feeling that we needed to get over this hump!

Heart Echo was good(45%?)don't understand the number but we were told it was good,down a little, but good.

Pulmonary Function test, not back yet but the tech thought it was down just a little from March but still normal range.

We go to University of Michigan tomorrow and I'm sure they will explain more.I was at work when Dr Stein called so I couldn't ask everything I want to know.Also tomorrow we start ECP Photopheresis. Here is a web site that kind of tells about it.

http://www.photopheresis.com/patients/index.jsp

This one below goes into a little more detail look under general background pages 1,2 and GVHD page 5

http://www.cigna.com/customer_care/healthcare_professional/coverage_positions/medical/mm_0320_coveragepositioncriteria_photopheresis_extracorporeal_photochemo.pdf

Thanks everyone for the prayers!!

Kelly

Bone Marrow Drive

2008 NASCAR Foundation Blood and Marrow Drive

July to October at race tracks nationwide This summer and fall, join with thousands of other race fans to help save lives. Be part of the annual NASCAR Foundation® Blood and Marrow Drive — give blood and join the NMDP Registry as a bone marrow donor. Race tracks nationwide have teamed up with the Hendrick Marrow Program and National Marrow Donor Program (NMDP), The NASCAR Foundation and the Jimmie Johnson Foundation (http://www.jimmiejohnsonfoundation.org/) to save lives.

Life. It's in you.Join the donor Registry and give hope to patients everywhere. To help you save a life, the Nationwide Foundation and the Hendrick Marrow Program are covering costs for volunteers who join at a participating track or online during a special campaign September 7 - 22, 2008.

Join at a race track near you Visit The NASCAR Foundation to find participating tracks: http://foundation.nascar.com/NetCommunity/Page.aspx?&pid=201&srcid=183
Can't make it to a track? Join the NMDP Registry for free here September 7 - 22
Join online now.


http://www.marrow.org/ABOUT/Your_Contributions/Hendrick_Marrow_Program/index.html

Hi
Ryan , my younger son had his knee surgery Friday and is doing well! He was so funny after they gave him his pre-meds. He said and did such goofy things. The nurses just loved him! He is at a homecoming dance at this moment, beieve it or not! I think he's going to be sore afterwards but what do I know, I'm just mom!

Kelly

Michigan Renaissance Festival