Saturday, July 26, 2008

RESULTS AND GRADUATION PARTIES

Sorry we haven't posted for a while. We have been sooo busy!!

Well to start all of Tyler's tests ncame out GREAT! PET CT showed no evidence of disease (Hodgkins), Pulmonary function test (lung function) was in high 80's, heart echo was great in fact the BMT doctor said his heart was probably in better shape than all of ours (which is pretty amazing with all that he has been through)! All blood work (including liver panel,platelets, WBC, etc) was all in the normal range!!!
He is now down to just a few pills (hardly any) he takes every day. He looks great!
The new thing is that they want to do a therapeutic regiman of radiation on the area where his disease was. It would be something they really haven't done on a post allo transplant patient (hodgkins). They don't know if it will help or not but they would like to try it on him. We are still in the talking stages, there are different reasons we are not completely sold on the idea, we shall see.

On a lighter note Tyler had two fantastic graduation parties! One in Michigan with my side and one in Ohio with John's side and also with our friends! I want to send out a BIG thank-you to everyone for making both days so special for Tyler!! You will never know how much it means to all of us to have such wonderful,supportive and loving family and friends!!

Will try to keep up on the posts!!
KJC

Tuesday, July 1, 2008

Scans and Tests

Long day at Michigan!!!
Tyler had a PET CT which took almost three hours! They said they were running behind.
Pulmonary Test
Heart Echo
He was suppose to have an eye exam to make sure everything is going well there but because the PET ran late they canceled it. I had made the appointment at 3:45pm but they changed to 11:00am because the doctor had somewhere to go. Oh well, he doesn't seem to be having any vision problems so now the appointment is for July 15th.

Now we wait for the results! Our next appointment is on July 10th, Tyler's Birthday!
Hopefully everything will be great! He feels good and looks fantastic! His hair is coming back in. So far so good!

In between appointments today we noticed our car temperature gage was getting into the red! So John figured out it was a fuse and also the one fan was tied up! What next?!!! It's always something!!! But he has it going again, new fan and all!
Thank you to everyone's thoughts and prayers for Tyler and thanks for checking in!

KJC

Tyler's Pics

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