http://pages.lightthenight.org/noh/Toledo09/TeamTyler
We are walking in support of so many who are fighting this awful disease in Tyler's memory the way he would want us to. If you would like to support us in any way,walk,donate, it would all be much appreciated. Just go to the link.
Kelly
Wednesday, October 7, 2009
Saturday, May 30, 2009
Monday, March 30, 2009
Thursday, March 12, 2009
It's been a while since I have updated and I'm still not sure what to say.
It's been pretty tough on all of us since Tyler passed away.
We really had no warning, no idea that this was going on. Tyler never complained about anything or showed any symptoms that anything was wrong. He basically layed down on the floor (the boys thought he was playing with the cat) and he was gone.
We have so many unanswered questions of what may have caused this, I will try to contact his BMT doctor again when I get the coronors report.
I have not heard back from them.
It was such a shock, everything was pointing in the direction of him doing so well. Even the coronor said it is hard to understand why this might have happened in someone as healthy as he was.
Healthy seems so unusual of a word for someone in his shoes, but that goes to say his insides were still in good shape.
It's hard to write, so I am taking baby steps right now. I will write more later.
I do want to thank EVERYONE for all their sympathy, support, love and prayers.
And also for including Tyler in their carepages,caringbridge and blogspot sites. Thanks to everyone at the LLS discussion board and webmagic-hodgkins lymphoma board for all your love and support.
Mrs Blausey you are such a special lady, we love you.
Everyone at the Eastwood schools including his class of 2008, you're all wonderful. All of our FAMILY and FRIENDS, including Troy Twp Fire and EMS have done so much for us, thank you. Amy thanks for being there, I know it was hard.
And Sara thank you for including Tyler's name on your bike ride in Tahoe benefitting LLS. Everyone who has taken such good care of Tyler, Thank you.
To all our cancer warriors keep fighting, you can win this war.
Prayers to all
Kelly
It's been pretty tough on all of us since Tyler passed away.
We really had no warning, no idea that this was going on. Tyler never complained about anything or showed any symptoms that anything was wrong. He basically layed down on the floor (the boys thought he was playing with the cat) and he was gone.
We have so many unanswered questions of what may have caused this, I will try to contact his BMT doctor again when I get the coronors report.
I have not heard back from them.
It was such a shock, everything was pointing in the direction of him doing so well. Even the coronor said it is hard to understand why this might have happened in someone as healthy as he was.
Healthy seems so unusual of a word for someone in his shoes, but that goes to say his insides were still in good shape.
It's hard to write, so I am taking baby steps right now. I will write more later.
I do want to thank EVERYONE for all their sympathy, support, love and prayers.
And also for including Tyler in their carepages,caringbridge and blogspot sites. Thanks to everyone at the LLS discussion board and webmagic-hodgkins lymphoma board for all your love and support.
Mrs Blausey you are such a special lady, we love you.
Everyone at the Eastwood schools including his class of 2008, you're all wonderful. All of our FAMILY and FRIENDS, including Troy Twp Fire and EMS have done so much for us, thank you. Amy thanks for being there, I know it was hard.
And Sara thank you for including Tyler's name on your bike ride in Tahoe benefitting LLS. Everyone who has taken such good care of Tyler, Thank you.
To all our cancer warriors keep fighting, you can win this war.
Prayers to all
Kelly
Sunday, February 15, 2009
Monday, February 9, 2009
We just heard from the coroners office.
Tyler had a pulmonary embolism ( Pulmonary embolism is the sudden blockage of a major blood vessel (artery) in the lung, usually by a blood clot. In most cases, the clots are small and are not deadly, but they can damage the lung. But if the clot is large and stops blood flow to the lung)
His death was instant,no symptoms, the coroner said sometimes they just develop.
He also said their was no evidence of disease (Hodgkins)
Tyler had a pulmonary embolism ( Pulmonary embolism is the sudden blockage of a major blood vessel (artery) in the lung, usually by a blood clot. In most cases, the clots are small and are not deadly, but they can damage the lung. But if the clot is large and stops blood flow to the lung)
His death was instant,no symptoms, the coroner said sometimes they just develop.
He also said their was no evidence of disease (Hodgkins)
Tyer is in Heaven
After a three year long battle with Hodgkins Lymphoma, Tyler passed away suddenly Saturday night around 6:00pm.
Tyler was always a fighter but couldn't fight what ever took him from us Saturday.
We don't know what took him but it was fast and we don't believe he suffered.
Funeral services will be :
Marsh Funeral Home
Luckey Ohio 43443
419-833-4011
Visitation:
Wednesday February 11th
2:00-4:00
6:00-9:00pm
Funeral:
Thursday February 12th
11:00 am
St Johns Lutheran Church
5520 Fremont Pike (State RT 20)
Stony Ridge Ohio
graveside service following and Beveavement Luncheon following
Online obituary and guest registry www.marshfuneralhomes.com
We really miss him!!
Tyler was always a fighter but couldn't fight what ever took him from us Saturday.
We don't know what took him but it was fast and we don't believe he suffered.
Funeral services will be :
Marsh Funeral Home
Luckey Ohio 43443
419-833-4011
Visitation:
Wednesday February 11th
2:00-4:00
6:00-9:00pm
Funeral:
Thursday February 12th
11:00 am
St Johns Lutheran Church
5520 Fremont Pike (State RT 20)
Stony Ridge Ohio
graveside service following and Beveavement Luncheon following
Online obituary and guest registry www.marshfuneralhomes.com
We really miss him!!
Friday, January 30, 2009
levels
We haven't checked in for a while, things are going pretty good.
The week of christmas while doing ECP, Tyler's immuniglobin dropped into the 200's and the day after christmas he was at UM getting Ivig infusion.
Our friend Jan's grandson passed away on December 27th after battling cGVHD for about a year after an allo transplant. We met his family when Tyler had his transplant. He gave it a very good fight until his body just gave out. Our thoughts and prayers are with his family.
Last Friday Tyler had an appointment at UM cancer center and for some reason his counts decided to go a little off from two weeks ago.
His Tacro (anti-rejection med) level went high
His platelets droppedThis is his CBC levels we're watching:
------- 01/07/2009 --- --- 01/22/2009
Tacro level ----8.0 --- -- 1.5
Potasium ----5.2 - ----- 5.1
immuniglobin ---- ? --- -- 417
Platelets ----162 --- -- 109
RBC ----- 4.30 --- -- 4.22
WBC ----- 13.6 --- -- 8.6
ALT ----- 49 --- - -- 43
LDH ------ 381 --- - -- 389
ANC ------11.2 --- - --- 6.1
Some levels dropped down and others went up, so they don't know if he was dehydrated or had a virus (a week ago he had diarrhea) so they ordered more tests, including thyroid (he's always so cold).
We also had to get more blood work this week (haven't heard results yet). They dropped his tacro from 1 mg twice a day to .5 mg twice a day (and he had to skip next two doses), dropped his steroid from 48mg every other day to 32mg every other day and stop Bactrim for now.
I have to tell you starting Sunday his eyes started to look red (cGVHD?) his temp on two different thermometers was 94.5f and 94.7f, We were a "little" concerned on breathing.
Monday night at about 7:30pm he proceeds to tell us everything went black on him 3x that day, he didn't pass out but he had to wait for things to come back.
We started to push him to drink more including some powerade, and kept him from school the following day.
No, we didn't call UM because he was still controlled and we kind of thought maybe between being dehydrated and the big drop in meds that could of been the cause.
We even debated on whether or not his skin was starting to look a little red.Wednesday things started looking better and today eyes look alot better, skin doesn't look red at all and no more blackout issues!
Who Knows?!!
I am just glad things are starting to turn back around. He is much better about keeping hydrated (we think that it kind of scared him) and now he realizes how important it is.February 20th is next cliic visit but we're sure he will have to have Ivig before that. That will be his 4th blood product he has received besides stem cells in his three years of fighting this awful disease.
March we start 1 year tests
Please keep all our cancer warriors in your prayers!!
God Bless
Kelly
The week of christmas while doing ECP, Tyler's immuniglobin dropped into the 200's and the day after christmas he was at UM getting Ivig infusion.
Our friend Jan's grandson passed away on December 27th after battling cGVHD for about a year after an allo transplant. We met his family when Tyler had his transplant. He gave it a very good fight until his body just gave out. Our thoughts and prayers are with his family.
Last Friday Tyler had an appointment at UM cancer center and for some reason his counts decided to go a little off from two weeks ago.
His Tacro (anti-rejection med) level went high
His platelets droppedThis is his CBC levels we're watching:
------- 01/07/2009 --- --- 01/22/2009
Tacro level ----8.0 --- -- 1.5
Potasium ----5.2 - ----- 5.1
immuniglobin ---- ? --- -- 417
Platelets ----162 --- -- 109
RBC ----- 4.30 --- -- 4.22
WBC ----- 13.6 --- -- 8.6
ALT ----- 49 --- - -- 43
LDH ------ 381 --- - -- 389
ANC ------11.2 --- - --- 6.1
Some levels dropped down and others went up, so they don't know if he was dehydrated or had a virus (a week ago he had diarrhea) so they ordered more tests, including thyroid (he's always so cold).
We also had to get more blood work this week (haven't heard results yet). They dropped his tacro from 1 mg twice a day to .5 mg twice a day (and he had to skip next two doses), dropped his steroid from 48mg every other day to 32mg every other day and stop Bactrim for now.
I have to tell you starting Sunday his eyes started to look red (cGVHD?) his temp on two different thermometers was 94.5f and 94.7f, We were a "little" concerned on breathing.
Monday night at about 7:30pm he proceeds to tell us everything went black on him 3x that day, he didn't pass out but he had to wait for things to come back.
We started to push him to drink more including some powerade, and kept him from school the following day.
No, we didn't call UM because he was still controlled and we kind of thought maybe between being dehydrated and the big drop in meds that could of been the cause.
We even debated on whether or not his skin was starting to look a little red.Wednesday things started looking better and today eyes look alot better, skin doesn't look red at all and no more blackout issues!
Who Knows?!!
I am just glad things are starting to turn back around. He is much better about keeping hydrated (we think that it kind of scared him) and now he realizes how important it is.February 20th is next cliic visit but we're sure he will have to have Ivig before that. That will be his 4th blood product he has received besides stem cells in his three years of fighting this awful disease.
March we start 1 year tests
Please keep all our cancer warriors in your prayers!!
God Bless
Kelly
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