It's been a while since I have updated and I'm still not sure what to say.
It's been pretty tough on all of us since Tyler passed away.
We really had no warning, no idea that this was going on. Tyler never complained about anything or showed any symptoms that anything was wrong. He basically layed down on the floor (the boys thought he was playing with the cat) and he was gone.
We have so many unanswered questions of what may have caused this, I will try to contact his BMT doctor again when I get the coronors report.
I have not heard back from them.
It was such a shock, everything was pointing in the direction of him doing so well. Even the coronor said it is hard to understand why this might have happened in someone as healthy as he was.
Healthy seems so unusual of a word for someone in his shoes, but that goes to say his insides were still in good shape.
It's hard to write, so I am taking baby steps right now. I will write more later.
I do want to thank EVERYONE for all their sympathy, support, love and prayers.
And also for including Tyler in their carepages,caringbridge and blogspot sites. Thanks to everyone at the LLS discussion board and webmagic-hodgkins lymphoma board for all your love and support.
Mrs Blausey you are such a special lady, we love you.
Everyone at the Eastwood schools including his class of 2008, you're all wonderful. All of our FAMILY and FRIENDS, including Troy Twp Fire and EMS have done so much for us, thank you. Amy thanks for being there, I know it was hard.
And Sara thank you for including Tyler's name on your bike ride in Tahoe benefitting LLS. Everyone who has taken such good care of Tyler, Thank you.
To all our cancer warriors keep fighting, you can win this war.
Prayers to all
Kelly
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Tyler is a young teenage man with hodgkins lymphoma. He has relapsed twice and had two transplants. He is quite the fighter. Tyler died suddenly and unexpectedly on February 7, 2009 of a pulmonary embolism. He was cancer free. It was a very big shock. He had friends coming over later but...His family and friends miss him terribly
Hodgkins Lymphoma Awareness
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About Me
- Tyler Chambers
- Hodgkins disease survivor
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Eagle Scout Court of Honor February 2008
"A PAIR of SHOES"
"A Pair of Shoes"
I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.
Some woman are like me and ache daily as they try and walk in them.
Some have learned how to walk in them so they don't hurt quite as much.
Some have worn the shoes so long that days will go by before they think about how much they hurt.
No woman deserves to wear these shoes.
Yet, because of these shoes I am a stronger woman.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has lost a child .
~Author unknown
I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.
Some woman are like me and ache daily as they try and walk in them.
Some have learned how to walk in them so they don't hurt quite as much.
Some have worn the shoes so long that days will go by before they think about how much they hurt.
No woman deserves to wear these shoes.
Yet, because of these shoes I am a stronger woman.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has lost a child .
~Author unknown
2 comments:
Hi Kelly,
Think of you often and wonder how you and your family are doing.
I also wanted you to know that Tyler was one of our heroes - a successful Allo transplant for Hodgkins. Thank you for sharing his journey with all of us.
I am sure you are still often in shock - I know it feels unbelievable to me...
Hugs,
Kathy
HI Kelly - I came to Tyler's blog to get his last name to include on my Relay For Life luminaria bag in memory of our friends on the HL forum that we have lost in the past couple of years. Our RFL is on May 30th...check the forum for pictures after then.
Hope you are hanging in there. I can't imagine the heartache that you are feeling. It's just not fair to those left behind. I hate this disease and what it does to my family and friends.
((HUGS)
Susan - laulausmamma
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