We found out more info on echo: Injection fraction is 63% and Shortening fraction is 45%.
In other words he still has a NORMAL heart!!
http://www.acor.org/ped-onc/survivors/cardio/cardiotests.html
Tyler also started ECP Photopheresis today and he said it was a breeze! Hopefully it will do it's job against GVHD. I asked what an "average" length of time would be for doing ECP and I was told an average could be 18 months to 2 years! But... it might start at every 2 weeks then eventually be changed to 3 weeks, 4 weeks,once a month, every other month. It also could be a shorter time or longer just depends.
Also blood work looked good
Alt on it's way back down
WBC a little high (caused by gvhd we think) but not too bad
Platelets a little low but not bad
Over all another good day!!
Love to all
Kelly
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Tyler is a young teenage man with hodgkins lymphoma. He has relapsed twice and had two transplants. He is quite the fighter. Tyler died suddenly and unexpectedly on February 7, 2009 of a pulmonary embolism. He was cancer free. It was a very big shock. He had friends coming over later but...His family and friends miss him terribly
Hodgkins Lymphoma Awareness
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Where are You From? Please Pin Yourself!
Eagle Scout Court of Honor February 2008
"A PAIR of SHOES"
"A Pair of Shoes"
I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.
Some woman are like me and ache daily as they try and walk in them.
Some have learned how to walk in them so they don't hurt quite as much.
Some have worn the shoes so long that days will go by before they think about how much they hurt.
No woman deserves to wear these shoes.
Yet, because of these shoes I am a stronger woman.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has lost a child .
~Author unknown
I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.
Some woman are like me and ache daily as they try and walk in them.
Some have learned how to walk in them so they don't hurt quite as much.
Some have worn the shoes so long that days will go by before they think about how much they hurt.
No woman deserves to wear these shoes.
Yet, because of these shoes I am a stronger woman.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has lost a child .
~Author unknown