LOOOOONG DAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

LOOOONG DAY!!!!!

Well we were up and going this morning to get to University of Michigan for clinic appointment and ECP.Clinic went well. Tyler's CBC were pretty good,
WBC 14.7
PLT 136
HGB 15.4
ANC 12.7
ALT 45
AST 15
LDH 249
His cGVHD looks pretty good, a little red on his arms and eyes still dry.Mouth is still patchy also, but all in all not too bad! Dr Choi brought his steroids down a little again and thinks he is doing good!Then we went to ECP. Tyler is an unusual kid, normally BMT patients don't have such a high Hematocrit (which isn't a bad thing) plus his size, he should be able to do a "big kit". Because his blood pressure run low they have to do a "small kit". The problem is that because of all the red cells in the Hematocrit, they tend to spill over when trying to collect white cells. So basically it takes longer to do the "photo" part of the treatment. OH Well, about 5-6 hours later we were done and on the road for home at about 6:30pm tonight! But everything went well, he's a little tired out and not thrilled to be up there that long but.... is our glass half full or half empty?!!!
We are very blessed that through all this Tyler is still doing pretty well. It could be much worse!

We are also blessed with such good people around us! A big THANK-YOU goes out to Eastwood High School class of 2008 for the gas card for three hundred dollars!! THANKS! It sure comes in handy with all the trips to Ann Arbor!
Also an update on Ryan, his knee is doing well.
Thanks for the prayers and support
Throw a few more in for all our friends battling this awful disease!
Kelly