Ever feel like your mind is in a cloud?
Lately I feel I just can't think straight!
I am sure it's just the stress of upcoming scans but it sure is taking a toll on me. I have been trying to get hours at work but sometimes... it's the little blunders lately! Oh well, trying!
I want to thank everyone for writing in all the well wishes to Tyler!
It's nice having such wonderful and supportive friends and family!
Tyler is doing pretty good.
His first appointment back won't be till the 15th and ECP again the week of xmas.
His eyes,skin and mouth are looking better so maybe the ECP is working. He is having an issue with cramps in his calf off and on. He is trying stretching to relieve it. Probably the steroids.
I have talked to a Grandma of a young man who had a transplant a few months before Tyler. Unfortunately his GVHD is getting the best of him and he is on life support. Please say a prayer for Allen and his family, it doesn't look good. He has been in pain and hasn't walked for a long time.
I also talked to a friend and a little girl who was being treated for ALL when Tyler was being treated has relapsed and will need a transplant.We're praying for you Vesta! I don't know for sure but I think she is 5 or 6 now.
Also Eric, praying for a successful 2nd transplant
Adrienne hoping they will be able to pin point the pain and find a new trial for you
Noah hoping transplant will not be too far off
Also prayers for all our cancer warriors as they courageously fight their battles! We are thinking of each of you!
Kelly
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Tyler is a young teenage man with hodgkins lymphoma. He has relapsed twice and had two transplants. He is quite the fighter. Tyler died suddenly and unexpectedly on February 7, 2009 of a pulmonary embolism. He was cancer free. It was a very big shock. He had friends coming over later but...His family and friends miss him terribly
Hodgkins Lymphoma Awareness
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Where are You From? Please Pin Yourself!
Eagle Scout Court of Honor February 2008
"A PAIR of SHOES"
"A Pair of Shoes"
I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.
Some woman are like me and ache daily as they try and walk in them.
Some have learned how to walk in them so they don't hurt quite as much.
Some have worn the shoes so long that days will go by before they think about how much they hurt.
No woman deserves to wear these shoes.
Yet, because of these shoes I am a stronger woman.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has lost a child .
~Author unknown
I am wearing a pair of shoes.
They are ugly shoes.
Uncomfortable shoes.
I hate my shoes.
Each day I wear them, and each day I wish I had another pair.
Some days my shoes hurt so bad that I do not think I can take another step.
Yet, I continue to wear them.
I get funny looks wearing these shoes.
They are looks of sympathy.
I can tell in others eyes that they are glad they are my shoes and not theirs.
They never talk about my shoes.
To learn how awful my shoes are might make them uncomfortable.
To truly understand these shoes you must walk in them.
But, once you put them on, you can never take them off.
I now realize that I am not the only one who wears these shoes.
There are many pairs in this world.
Some woman are like me and ache daily as they try and walk in them.
Some have learned how to walk in them so they don't hurt quite as much.
Some have worn the shoes so long that days will go by before they think about how much they hurt.
No woman deserves to wear these shoes.
Yet, because of these shoes I am a stronger woman.
These shoes have given me the strength to face anything.
They have made me who I am.
I will forever walk in the shoes of a woman who has lost a child .
~Author unknown
3 comments:
Hang in there until the scans. I know how overwhelming it can be sometimes. It's great to hear that Tyler is doing well and the ECP is working. Hugs, Alison (Adrienne's mom)
Mind in a cloud? Yup - I understand completely.
Here's hoping for great scans and easy ECP sessions! Think of you guys all the time..
Kathy
Hey Kelly,
You guys have been on my heart all week and in my prayers always.
Thinking of you.
Heather Robertson
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